Dump Him

May 13th, 2012 by Ms. Labrat No comments »

Mother’s Day, 2012

“If you want to know how a guy is going to treat you down the road, take a look at how he treats his mother. If he’s respectful of his mother, he’ll be respectful toward you. If he’s a jerk to his mother…you’d better dump him. Fast.”

My mother’s guidelines were intended to direct me to a suitable marriage partner. I applied them accordingly, and married a guy who adored his mother. That was twenty years ago. My mother’s advice proved so effective, I thought I’d never have the need for it again.

This summer, I was given a rare opportunity to apply Mom’s precepts to a relationship in an entirely different sphere. The man in question had done some business with my lady-parts, but that did not make him a potential romantic partner. The man in question was my urologist.

When I’d met the urologist in his clinic, I’d been dressed in a johnny coat. He’d been dressed in a suit and tie. His old-world formality, his swarthy complexion and his slicked-back, jet-black hair reminded me of my dear departed Grandpa Blanco. But despite the family resemblance, deep in my heart I didn’t trust the guy. I thought he was a show-off. He seemed more interested in impressing me with the latest gee-whiz treatment than in treating me appropriately.

A relationship with a doctor ought to be strictly professional, not personal, so I put whatever personal reservations I might have about him to the side. Yet a nagging voice inside me wondered if perhaps this man’s showmanship might lead to a less than desireable outcome. I was on the fence about seeing him again, or pursuing his “cutting edge” treatment, in part because I didn’t want to go through the trouble of shopping for a new urologist, and in part because mere intuition didn’t seem like a reliable measurement of a doctor’s professional aptitude.

As fate would have it, my intuition would be proven correct, luckily without the messy consequence of an undesired clinical outcome.

In what would be my last encounter this urologist, I was dressed in street clothes, and he was dressed, as always, in his suit and tie. I was carrying a parcel, a bright silk dress I’d purchased off the $50 rack in the back of the shop, which was nestled in the heart of the self-proclaimed “largest bridal district in North America.”
We both did a bit of a double-take, as sometimes happens when you run across a familiar person in an unfamiliar context. My husband and son arrived at the shop, having finshed their task of getting measured for tuxedos across the street. I introduced them to my “doctor” without spelling out his specialty for all the assembled would-be brides and bridesmaids to hear. And then the explanation for the urologist’s presence in a bridal shop became clear. A little old lady hobbled over to us on the arm of a lovely young college girl. The urologist introduced us to his daughter and his mother, who had just flown in that morning from Iran for a family wedding.
I couldn’t help it—I shared my delight at the bargains on the fifty dollar rack. “You couldn’t buy this much silk for fifty bucks! It’s Dupioni.”
As it turned out, the urologist knew all about the $50 rack. They were only there for the bargains. As nothing on the rack “carryies her size,” the urologist was planning on driving his mom to Goodwill to peruse the dresses there.
Goodwill? I wondered if his shopping plans weren’t a bit labor intensive. Why not pay full price at one of the 250 bridal shops within these scant two blocks? Hadn’t the urologist’s mother already had quite a day, flying all the way out to our fair midwestern city from Iran?
“She’s made of iron. Look at her.”
At this point, our party of two families had moved onto the street. My husband was halfway down the block, in a hurry to get to the car so he could deliver me from this unpleasant awkward encounter here in bridal shop purgatory. My son was halfway between his dad and his mom, tarrying in case I needed an arm. The urologist was keeping up with me, while the urologist’s mother…that stalwart traveler was shuffling slowly but determinedly by the fifties era storefronts, unaided by her granddaughter or her son.
At that moment, I made my decision. Dump him. The urologist wouldn’t wait up for his ancient mother, no matter how I tried to slow our pace. The man was too cheap to buy his mother a new dress for a wedding she’d traveled a long way to attend. If he could afford a plane ticket from Iran, he could afford a full priced dress.
My husband pulled up alongside us. My son opened the car door for his mother.
That is how it’s done.
When I waved goodbye to the urologist, I knew it was forever.

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February 18th, 2012 by Ms. Labrat No comments »

One summer night, my husband and I were sitting on a picnic bench outside an ice cream shop in one of the more precious neighborhoods in Cincinnati, as our son and his buddies from Shakespeare Camp clowned around and blew off some post-performance steam. The flavor of the outing was pure vanilla. Let’s just say none of the boys would be a shoe-in for the role of Othello.
My husband said, “I don’t feel white here.”
My husband is white. Half white. He is also half Chinese.
He spent most of his childhood in North Dakota, except for a year in Pakistan. There were no Chinese kids, or other half Chinese kids, in Grand Forks, North Dakota. There were no Chinese kids, or other half Chinese kids, in Lahore, Pakistan. Of the two cities, Lahore was by far the more racially diverse.
In North Dakota, my husband-to-be was regarded as an alien. In Pakistan, he was regarded as an American. It’s hard to guess which must have felt more uncomfortable. Even back in the ‘70’s, Americans were not exactly beloved in Pakistan.
In any case, his identity as an American pretty much evaporated as soon as he returned to the good old US of A.
Chinese Americans can tell at a glance that he’s not Chinese. Just like white Americans can tell at a glance that he’s not white.
There is one state in the union where my husband blends right in. While vacationing in Hawaii, he may be offered a local discount via a top-secret hand gesture and a knowing smile. For an hour or two, he’ll be all puffed up. And then he’ll be offered a fork at a Chinese restaurant. Deflated, he’ll be forced to ask for chopsticks.
When we moved to Cincinnati, I think things got a little easier for him. (I could be dead wrong.) Race in Cincinnati is black and white. Black Cincinnatians and white Cincinnatians can all agree on one thing. My husband isn’t black. Which means, for all intents and purposes, he’s white.
That standard generally holds, unless my husband happens to be surrounded by unfamiliar white people. Then he’s not-white. And the question hovers, usually unspoken, unexpressed, except through second glances.
“What is he?”
On this vanilla flavored outing, my husband and I talked to the other Shakespeare parents about volunteer opportunities at the arts school, about an upcoming pool party at the swim and tennis club. We did not openly mock the affluent white street guitarist playing Bob Marley. Instead, we exchanged whispers and surreptitious snickers.
After our breathless son rejoined us, my husband went off to get the car. He wasn’t just being a gentleman. That particular evening, it wasn’t physically possible for me to get up and join him for the three block walk on a mild summer night.
Once my husband pulled up in front of the ice cream shop in our Element, the gig was up. It was my turn to be the outsider. I stood. My knees buckled. Our son took my arm. My knees buckled again. Once, twice, three times more before fair Hamlet got me to the car.
I, too, have a shifting identity. For me, relapsing/remitting multiple sclerosis (MS) means sometimes I can walk, and sometimes I can’t.
What am I?
I am disabled. I have a placard to prove it.
What am I?
I am healthy. I can swim a lot of laps.
Once—only once—a man yelled at me as I walked or ran, I suppose with undue vigor, away from my placarded car.
“You’re not disabled.”
What does he know?
Usually, when I run from my car, I am running to the bathroom, ‘cause I have an MS bladder, and I’ve really got to pee.
Sometimes, when I see an available handicapped spot, I don’t have to pee. My legs feel just a wee bit tingly. I entertain the notion of parking further back. If there is only one empty handicapped parking space, I may just keep the placard in the glove compartment, and park somewhere less accessible. Which doesn’t always turn out to be such a smart decision. I can’t tell you how many times I have parked politely, and then felt not-so-good on my return. I have had to lean on a full shopping cart as if for dear life, my legs in excruciating pain, as I’ve pushed the cart past two, maybe three, perfectly empty handicapped parking spaces.
So much for that.
My husband doesn’t get to choose when he is perceived as white. I don’t get to choose when I am perceived as disabled.
I look disabled when I’m in my wheelchair.
I look fit when I swim my laps.
If I didn’t swim, if I didn’t persistently lift very minimal weights, I would not be at all toned. I would not be able to blend right in with all those other white parents from Shakespeare Camp, if only for a while.
Oddly enough, my husband still hasn’t gotten over caring what other people think about our parking our car in a handicapped spot. He will often run around the car, and give an ostentatious show of offering me his arm, whether I need it or not. It’s like he’s broadcasting, “See, people, my poor wife is handicapped. That’s the reason why we’re using this spot.”
He clearly feels the pressure of the unasked question.
“What is she? Is she really handicapped?”
Screw that. I’m not dead yet. Don’t put me in box.
And while you’re at, screw, “What is he?”
Race is a construction.
So is disability. All of us have an uneven distribution of abilities. These attributes will wax and wane over time. We might as well relax about affixing any labels. They all peel off eventually.
What am I?
I am.
Who are you to ask?

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In Favor of Anansi Tales

January 8th, 2012 by Ms. Labrat No comments »

Works reviewed:
The Anansi Boys by Neil Gaiman
The Black Banners: The Inside Story of 9/11 and the War Against al-Qaeda by Ali Soufan
Mission Impossible 4 by Brad Bird

I find it impossible to review Neil Gaiman’s The Anansi Boys without mentioning other books and stories I’ve read or heard lately. I blame Anansi, the god of stories, for my inability to examine this one story without seeing its connection to others. We are all bound up in the same great narrative web.
Anansi is the progenitor of the eponymous heroes of Gaiman’s gleeful tale. His two sons, The Anansi Boys, appear at first to be total opposites: Fat Charlie lives a humdrum life, whereas his brother Spider is the life of the party. Yet when Spider drops into town, he is able to effortlessly assume his staid and serious brother’s identity, exposing Fat Charlie’s corrupt boss and seducing Fat Charlie’s chaste fiancée in the process. Is Spider abusing some divine power to impersonate Fat Charlie? Or are Fat Charlie and Spider not as different as they’d like to think? Could it be that Fat Charlie has been squandering divine powers of his own?
For a while it looks like it’s going to take a miracle for Fat Charlie to forgive his brother for shaking up his life. Not to worry, these boys can work miracles. Don’t forget, their father is Anansi, the god of stories. A well-earned miracle arises in every Anansi story.
In the course of this engaging novel, Gaiman goes back—all the way back—to the dawn of stories. In the beginning, he tells us, Tiger owned the stories. Tiger stories reflected the lives of the earliest storytellers—they were nasty, brutish and short. All Tiger stories began in blood, and ended in tears. And then an insurrection took place. Anansi the Spider outwitted Tiger, and took ownership of all the stories. Stories no longer served as rote recitations of violent acts. Stories became as subversive as the clever god Anansi, reflecting a revolution against Tiger’s view of Might as Right. The world became a more nuanced, more civilized, and altogether more enjoyable place, a place where stories flourish.
I had the good luck to hear the delightful audio book version of The Anansi Boys on a recent family road trip. Once we reached our destination, I returned to reading Ali Soufan’s a gripping nonfiction work, The Black Banners: The Inside Story of 9/11 and the War Against al-Qaeda. Oddly enough, as I read this urgent firsthand account of high stakes interrogations, I couldn’t help but see the conflict between Anansi and Tiger playing out between two very different styles of intelligence gathering. Ali Soufan systematically displays his successes as the leading Arabic speaking FBI interrogator. He used Anansi-like tactics of outsmarting his interlocutors, who were invariably prepared for Tiger-like torture, and not theological debates on the finer points of interpretation of the Koran. Soufan drew the terror suspects out, discovering their hopes, and also their weaknesses, ultimately tricking them into thinking he already knews everything about them, so there was no point in lying. Defeated, they revealed all.
Sadly, after 9/11, American foreign policy grew more fearful, and less rational. Enter the Tiger. “Enhanced interrogation,” the fancy term for torture, became the order of the day. Sufan continued to elicit actionable intelligence over tiny gifts such as a phone call home, or a plate of diabetic cookies, while the CIA learned nothing whatsoever after hours of water boarding and humiliation. Worse, the CIA took credit for Soufan’s discoveries, using his intel as justification for the continuation of their futile, ultimately un-American, coercive interrogation policies. Sufan’s account stands as a much-needed corrective to well-publicized falsehoods he was powerless, for many years, to contradict. His manuscript preserves the CIA’s redactions, which do pathetically little to prevent the truth from shining through.
I wish I could definitively say that the Tiger techniques are a thing of the past, and that the Obama administration put a stop to enhanced interrogation. Unfortunately, this book remains necessary and relevant. The Black Banners is a must-read for every informed citizen. Not enough decision makers and culture shapers have a realistic understanding of effective intelligence gathering. Since finishing The Black Banners, I’ve seen multiple examples of our pop culture perpetuating misconceptions of torture as an effective means of eliciting accurate information, most recently in an unconvincing scene in Brad Bird’s megahit, Mission Impossible 4. I’d like to send Brad Bird a copy of the Black Banners. Ali Soufan is a true American hero, as overlooked and under-credited as Bird’s fictional heroes from his earlier masterpiece, The Incredibles. The fate of our world may indeed depend on how we tell our stories; a movie version of The Black Banners might be just the way to start.

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Saving Face

December 8th, 2011 by Ms. Labrat No comments »

“God has given you one face, and you make yourselves another.”
William Shakespeare
Act 3, Scene 1 of Hamlet

I knew I was in trouble before I opened up my eyes this morning. I could feel that my eyelids were swollen before I attempted to wrench them apart. A trip to the mirror confirmed what my senses implied. My upper eyelids were elephantine. Worse, there were tender red patches beneath each eye. Worse still, tonight I’m scheduled to sit in front of a hundred or so paying audience members with a spotlight shining on this problematic face. Worst of all…it’s kind of my fault.
I write, “kind of,” because last night, when I applied my makeup, I hadn’t realized the potential for this consequence. I write, “my fault” because my neurologist had given me the opportunity to take an all-expense paid trip to the National Institutes of Health, (NIH) in Bethesda, Maryland, and get my rash seen by a dermatologist there. At the last minute, I’d chickened out, and had the NIH cancel my flight, because on that particular morning, my skin didn’t look so bad, nothing a little concealer couldn’t fix. I couldn’t stand the thought of flying all the way to Bethesda over a couple of little scaly patches that could be covered up with concealer. Believe it or not, I thought I was saving face. I couldn’t stand the possibility of being regarded as a hypochondriac.
Yeah, right. That hypochondriac option has been out for decades. Who did I think I was fooling?
I’m going to have to back up a bit. I’m going to have to be straight with you about a thing or two.
Starting with this: I set up this blog to share my experiences on an experimental medication for multiple sclerosis, DAC HYP. It’s only now that I notice that I’ve underplayed…as in, possibly haven’t mentioned…that I’ve experienced a side effect. That side effect is rash.
You might well ask, why not?
Here’s why not. I’ve got multiple sclerosis (MS) a horrible, and so far, incurable, degenerative neurological disease, and DAC HYP is the only medication I’ve taken—and I’ve taken plenty—that has actually served to stop the disease progression.
That’s pretty significant.
Rash? As side effects go, rash just hasn’t seemed that significant.
To put it into context, a potential side effect for a competing drug, Tysabri, is sudden death. So, yeah—rash. What of it?
I’d rather have a rash I can see than a brain lesion I can’t see. The choice to take the medication, and bear with the side effect, has been a no-brainer, at least for me. For a while there, I thought that anyone who saw things differently must just be more brain damaged than I am.
Two things have happened since I’ve started this blog that have changed the way I view the risk/benefit analysis of taking a drug that stops MS, yet causes rash.
Thing One: after years and years and years on this drug, I finally did get one—and only one—new brain lesion. And still, as far as I can tell, that’s a phenomenally good result if you compare the efficacy of this drug to that of any other MS drug out there. I’ve been told this one lesion had the good grace to show up in a “silent area.” I don’t agree that the damage was silent—I felt pretty horrible for a while there—but in truth, I’m feeling all right now.
Except for—
Thing Two: the rash has gotten worse.
Way worse.
When the rash first showed up—I believe that happened around the time the medication changed its formulation—it appeared on the inside of my hand; a nice, innocuous spot. No one was too likely to see it. And that was important to me. Some people call MS an invisible disease. I like it’s invisibility, thank you very much. MS only stays invisible if it isn’t allowed to progress.
The rash itched. I applied hydrocortisone. It went away. And then the rash reappeared, on my face of all places. A place everyone was likely to see. And that made the rash something I had to…um…face.
I managed to not face it.
I had a solution. I used a cosmetic. A simple concealer. Perhaps if I were a man, and not in the habit of putting on makeup, that move would have felt like a big deal. But I am a woman. Most of us women are all too familiar with, shall we say, putting our best face forward. (See: Hamlet.)
So yes. I wore concealer over my rash every day. Even on those days the NIH flew me out to examine me, to, you know, see if I was experiencing any side effects on DAC HYP.
Maybe we’ve been at cross-purposes. Whenever I visit the NIH, I always strive to be mistaken for a doctor instead of taken for a patient. My most treasured moments in Bethesda are the times I (almost) get away with this, like when a driver for the NIH picked me up from the hotel and asked, “Are you a patient, or…”
I treasured that “or.” I gave that driver a big tip.
The NIH culture supports these seemingly innocuous mistakes of identity. A nurse once berated herself after she’d asked me a question about my condition in an elevator. “I shouldn’t have done that. I’m not supposed to address you as a patient in front of other people.”
I’m not to be treated like a patient. I’m to be treated like a peer. One never gets too personal with one’s peers. I’ve had one neurologist actually apologize several times during an examination, for having to touch me, for asking me to disrobe. I understood she was expressing her respect for me. But that sentiment can go too far, and actually disrupt the messy process of getting down to the ugly truth.
And it’s hard to get there. For instance, you’ve been reading paragraph after paragraph about my rash, and I still haven’t mentioned I also have scaly dry patches on the inner folds of my arms and my legs. These patches itch. But I tend to forget to mention them, not only to you, but to my neurologist. Why? Because these itchy patches are not visible to others, at least not in the winter months. I can bear almost any amount of discomfort. I just can’t bear exposure.
Which brings me to the prospect of going onstage with a rash in front of about 100 people.
I’d had other plans for this evening’s appearance. I’d planned to get a professional make-up job. I’d planned to get an elaborate up-do. I’d planned to look fabulous, like I did on opening night, just a few hours after I made that cancellation.
Life doesn’t always go as planned
When I’d cancelled my flight to the NIH and my appointment with the NIH dermatologist, my neurologist had suggested I quit wearing make-up. After opening night, I complied. As of last night, my face was repaired, just in time, I thought, for me to take the stage again. Thinking the problem was over, I’d applied a little makeup before going to a concert. We know how that turned out.
This morning, I cancelled my make-up session. I didn’t want to make my elephant face any worse. I did not cancel my up-do.
And then I went to yoga. I’m so glad that I did.
Our teacher, Sharon, shared a passage from a book in which yoga instructor Sianna Sherman answers the question, What’s the best advice you’ve ever gotten?
Sianna answers, “Inner body bright,” a phrase she’d picked up from her teacher, John Friend. Sianna explains that this phrase is “his way of saying ‘It doesn’t matter what’s happening on the outside. No matter how fierce and intense and up against ourselves we feel, if we tap into that place—the place that yoga guides and invites each one of us to—we’ll find that our essence is bright and that our inner freedom is fully present.’ Often, it’s our outer freedom that’s compromised by own mind. We say: ‘Oh I’m not free’ or “I’m a victim, I’m not empowered. Or, ‘This happened to me…’ And then we start to close down. And that’s easy to do, but if we go inside and wait a minute, there’s this inner freedom that’s never compromised; there’s this inner light that’s always true. So you say to yourself, ‘Inner body bright, let me melt the outer body, melt all the crazy stuff that’s happening into the fire of my heart, into that inner light, and then I’m going to stand tall in this light and keep going, no matter what.”
As it happened, that message was exactly what I needed to hear to muster the courage to get onstage with a rash, and without the makeup. When I sit in the spotlight, I somehow doubt I’ll be whispering to myself, “inner body bright.” But I did get the message there’s more to me than meets the eye.
I have lived a long time. I have sported many appearances. I have been a cute little girl, a wince worthy adolescent. I’ve been a woman in a wheelchair. Last week, just before my opening night performance, when I was the lady with the fabulous updo, the owner of an upscale restaurant rushed up to my beautiful family, and asked, “Where do you come from?” in awestruck tones, as though he expected us to answer, “We have descended from Mount Olympus.” That night, it didn’t feel like a challenge to take the stage.
Tonight I’ll have to give the audience some credit. I’ve cancelled my up-do. I won’t apply concealer. I’ll see if I can summon up enough inner beauty to outshine the rash. (The swollen eyelids had calmed back down.) I am, after all, performing for trueTheatre. The audience expects me to be vulnerable. What better occassion to take that risk?

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trueCHRISTMAS

December 1st, 2011 by Ms. Labrat No comments »

Last month, I celebrated National Health Blogging Month by not blogging about my health. Never one to skimp on celebration, I concurrently celebrated National Novel Writing Month by not writing a novel. As far as I could figure, November was not National Short Story Writing Month, so I figured it was the right time write a scary short story. I sat down at my little white MacBook to write my scary short story…and instead I opened Facebook. And then I watched a lot of erudite TEDtalks. And then I read the less erudite commentary on the TEDtalks. And then I read the articles on the New York Times site. Once I started reading the online commentary on the New York Times site, I knew I was far gone. Disgusted with myself, I set down my MacBook. And discovered a long latent interest in house cleaning. I wound up dusting a random fire extinguisher with all the vigor of a firefighter on National Fire Extinguisher Dusting Month.
The story I wasn’t writing was really, really scary. How scary? You won’t know if I never write it, will you? This story was so scary, that rather than write it, I volunteered to give my son a lift home from one of the coffee shops he frequents—a coffee shop located half a block from a bus stop. My son knows how to take a bus. And I, gentle reader, know how to not write a scary short story.
At the coffee shop, my son and I bumped into Dave Levy and Jeff Grogh, the producers of Cincinnati’s True Theatre—the Cincinnati version of The Moth. Dave Levy and Jeff Groh had an urgent need for storytellers. They’d just teamed up with New Edgecliff Theatre, which was looking for an Act 2 to follow their annual holiday performances of David Sedaris’s Santaland Diaries. The plan for Act 2 was to feature three local people, each telling their own 10 minute true Christmas story.
Dave asked if I had a Christmas story. My son burst out, “Boy, does my mom have a Christmas story for you!”
I gamely pretended I knew what my son was talking about. I could already see the procrastination opportunity this gig presented. I could stop surfing the web, and stop dusting! I could let that scary story… marinate… a bit longer while I prepared my trueChristmas story. And while the prospect of telling a trueChristmas story in the bright stage lights in front of a hundred strangers was scary… it was not nearly as scary as writing/not writing my scary short story.
Then Dave and Jeff made a special request that pretty much sealed the deal for me. The first time I’d performed for True Theatre, I’d written and memorized a script. This time around, they wanted me to experiment with not writing a script. Not writing? On National Health Blogging/Novel Writing Month? Perfect timing. I was in.
Telling a story is an entirely different discipline than reciting a story. There’s a different set of risks involved, and a different set of assumptions. It’s all improv.
Last night was Opening Night. There was certainly that first moment, when the lights were on me, and I couldn’t see anyone in the audience clearly, when I wondered what story would come out of my mouth this time. There was only one way to find out.
I think it worked out fine. I’m more a dialogue girl than a monologue girl, so the audience helped me tremendously by responding with a lot of laughs. And I probably would have never gotten those laughs in the first place if my students and my friends and my hairdresser and my husband and my son hadn’t let me practice my story on them before I got there.
I have no desire to ever put my trueCHRISTMAS story on paper. I want it to remain ineffable, like every other living thing on this planet. If you’d like to hear my trueChristmas story, you’ll have to come to the New Edgecliff Theatre at 7:30 Dec 8, 9, or 10. After that, the story dissolves into hearsay.
FYI: the other two trueTheatre storytellers I opened with were simply fantastic. You can catch Greg Newberry and Jennifer Verkamp performing their stories through Dec 3. Dave and Jeff are great curators, so I trust you can’t pick a bad night to show up. And of course, every night will open with a tried and true performance of the hilarious Santaland Diaries.
See you there?

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