Ms. Lab Rat

Ms. Lab Rat – Notes from an NIH trial

Archive for June, 2012

Tonight I am limping

June 26th, 2012

Tonight I am limping, but that’s because this afternoon I swam for an hour. I wasn’t swimming in the ocean, but the Cincinnati sky was as blue as any ocean, and that alone made it all worthwhile.

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Posted in Adventures, MS and exercise

Tags: limping MS relapsing remitting multiple sclerosis

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- After seventeen years of suffering neurological damage from relapsing remitting multiple sclerosis (RRMS), I ditched my FDA approved therapy and took a chance with an off-label drug called daclizumab. In the ensuing years, MRI after MRI has shown no further progression of my MS. Daclizumab is currently being tested for safety and efficacy by the National Institutes of Health (NIH). I am one of the lucky few being treated with the drug, which now goes by the name of DAC HYP. I am hopeful that in a few years, DAC HYP will become an approved therapy, and more people will have the chance to see the progress of their disease halted. DAC HYP is not a cure. I still have to deal with all the symptoms caused by the neurological damage I’ve accrued. This blog charts the course of my trials during the clinical trial. For the official story on the drug trial, try http://www.clinicaltrials.gov/ct2/show/NCT01143441?term=10-n-0125&rank=1
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